1) Movement - something that I had taken for granted
2) Handwriting - Turned my beautiful penmanship to chicken scratch
3) Walking forward - Another thing I had taken for granted
4) Stability - Literally leaves me shaken
5) Turning in the bed - Takes me about 5 minutes and most of the time I am drenched in sweat
6) Getting out of the bed - Most of the time it is roll....drop...squat and pull yourself up
7) Buttoning my own blouse - God forbid if they are small pearl buttons
8) Wearing my jeans standing up - Turns into "Dancing with the Jean"
9) Drinking anything without spilling - I leave tell tale signs of coffee....juice...heck even water
10) Eating without dropping - I have had food flying away before it entered my mouth, dropping food on the floor
11) Freedom - My most cherished thing i have ever had....Need to have someone close by all the time
12) My ability to drive - As I would be a danger to others and myself
13) My confidence - I would rather not do than do
14)
The ability to get out of a chair - majority of the time I feel like my
bottom is glued to the chair....other times I use the slip, slide and
pull method
15) The ability to walk without my feet
velcroed to the floor - I have lost count of the number of times I
tried to put a leg forward before realising it is not moving and
barely saving myself from falling splat on my face
16) Self esteem - My inability to walk to the bathroom to take care of my needs, by myself
17) Unable to control my head from nodding and shaking like an out of control pinging ball
18) Choking and swallowing - Heck I even choke while drinking water
19) My beautiful, sexy voice - my most important loss ...I did on air radio,, podcasts and video, none of which I can do now
20)
Most of it my dopamine cells in my brain - Parkinson's is on a
murdering spree and has killed almost killed 90 percent of the cells
So
I figured the world is not ready for me:) Because if I am so smart and
witty with only 10 percent of my dopamine cells working imagine how it
would be if I was at 100 percent:)
5 comments:
Yes world needs to keep up to you dear
That says it all.
Understand completely as I watch my hubby, a former teacher, taking the exact journey. It is heartbreaking.
Parkinson takes something from us every day no matter how small. All I can do is fight back anyway I can.
I can understand as my fil had it too and I saw him struggle through it. Only the person actually going through it can understand. We can only try to understand a bit of it
Stay strong. You are an inspiration
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